Ryan has had an interesting six weeks. He has had the GI flu twice in a month, which is not good for him as he cannot afford to not eat. I am hoping the longer he is in "school", the more immune he will come to the germs. We shall see if that is successful or wishful thinking. :)
Ryan had a swallow study at the end of September. Unfortunately, he was worse. That is a rare occurrence and unfortunate. He is now on honey-thickened liquids. His reflux medications were increased. These changes helped him to want to drink his bottle. He started to eat off his high chair tray. We thought we were on our way...
Then....we went for his weight check on Friday. Not only had he not gained weight, he had lost five ounces in the last month. He now has an official diagnosis of failure to thrive.
So he is now to change to pediasure in his bottles as it offers 30 calories as opposed to high calories formula which offers 24. Both have to be thickened. He does not like pediasure and is now refusing most food as well as his bottles, both formula and pediasure. Luckily we have an appointment with the ENT/swallowing specialist Monday morning (already scheduled). He will be deciding if he needs to scope Ryan under anethesia. I am thinking that is likely. Luckily, I have been through a few of these. :)
We will see what the next appointments hold. He continues to refuse to eat on a regular basis and most food. It is a strange phenomenon and one that is hard for all of us to comprehend. It has been interesting and hard to have two children with "special needs". I just have to remember the poem Maggie tells me regularly: "you get what you get, and you don't throw a fit". I am so thankful they are in our lives and that their minds/brains seem okay. Ryan has met all of his developmental milestones. We focus on the positives and try not to dwell on the negative.
We are very, very thankful for all the love and support from everyone!!!
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