It has been a while since I posted. So much has happened and I feel bad I don't post more often. I have a friend who posts every time another medical event happens with her son. I am going to try to do that. It seems like that would be a good way for everyone to stay caught up. So much happens and changes it can be hard to keep up with us. :)
Claire recently qualified for another year of occupational therapy. I am actually happy about this as they work with her on a lot of skills necessary for school. Her current abilities place her at a median age of 33 months. We are improving as this is only nine months behind her chronological age. She has also gained numerous "points" on the evaluation scales relative to last year's evaluation. So we are quite excited at her progress. We chose to send her to her current preschool at the church for three days a week next year as well so the extra help from OT will be nice. Claire also LOVES her occupational therapist, and I do not think she is nearly ready to say goodbye. She is quite popular at all of her therapies. :)
Claire continues in feeding and speech therapy. We are making progress; however, she still struggles with articulation and weakness in her lower jaw. She is talking more and uses words above her age, etc the problem is understanding her. So we continue to work....
Claire also was re-evaluated for physical therapy. If you remember she did not qualify in August to continue physical therapy. They felt she was able to perform age appropriate tasks. Unfortunately, this was most likely not the case and she was "coached" or helped through the evaluation. This is just a different technique and both the pediatrician and myself had concerns back then. At her evaluation a few weeks ago, she was found to qualify for physical therapy. Her broken leg may have made her a bit less strong; however, it was not the "cause" of her qualifying. In fact, the physical therapist discussed with me that after she had written and completed her evaluation of Claire she went back to read the evaluation from August. She was amazed and did not feel it was accurate and agreed with me that Claire could not do the tasks that had been reported she had done. So Claire will be starting physical therapy next week and will work up to twice a week sessions. Her median age was found to be 27 months. Her endurance is also a problem. She has a long road but this new physical therapist is WONDERFUL and we love her. She has TONS of experience with kids and comes from the children's hospital so is very prepared to work with kids like Claire.
Ryan continues with feeding therapy. He is making progress as he will drink thickened liquids from a cup. He still doesn't like to eat but doesn't seem to have an adversion to textures. We just continue to work to encourage him to eat. For now, he will just continue with feeding therapy as his speech is doing fine. In fact, he is more talkative than either of his sisters, probably combined....there is no such thing as quiet at the house. :)
I will try to keep everyone better updated about our progress in therapy in the future. Our therapists our becoming very much like family. I cannot imagine our lives without them!!
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