Claire "graduated" out of physical therapy in August. The recommendation is that she be evaluated again in December/January and make sure she has not regressed. I am not sure that she has as she seems to get around pretty well. She is much slower than most but that may always be the case. Her class at school is made primarily children that were two in the spring so she is able to keep up with them quite well (seeing as she is three). That class has been nice as it is a bit smaller and she gets alot of one on one attention, which she loves.
Claire continues with an hour of occupational therapy each week. The emphasis has shifted to fine motor skills, such as dressing, scissors, use of a crayon, etc. She still has marked weakness throughout her body. Medically this is called hypotonia, or weak muscles. It may be over time they grow stronger but no one really knows as there dodes not seem to be a "reason" for it. Ms. Paula, her therapist, who she adores says she is getting stronger. Still a ways to go. It is possible she will have enough skills come March to "graduate" from OT. I am not sure what she will think of this as she and Ms. Paula are very tight. :)
Speech continues to be an area of "weakness" for Claire. Her evaluation in August placed her at about 24 months so about a year behind. She remains very week in her lower jaw which effects speech and feeding. She is making strides and the speech/feeding therapist we have now is wonderful! She is very knowledgeable, especially for a new graduate. She did training and Children's Medical Center at Dallas so she has experience with more complex kids like Claire. It is likely Claire will remain in speech for the forseeable future. Each year she is to gain more sounds/articulation so it is difficult to catch up once behind, at least at this young age. Maybe she will grow out of feeding therapy but we have a ways to go. She is having difficulty mastering drinking out of an open cup. Always something.
Hopefully I will get a chance to update about the newest tests and discussions with the doctors as well as info about Ryan and Maggie. Our house stays pretty busy!!
Thanks for taking the time to keep up with us!
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